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Future perfect : confronting decisions about genetics
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ISBN: 0231121628 0231502486 Year: 2001 Publisher: New York, NY : Columbia University Press,

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Abstract

Genetic technologies have moved off the pages of science fiction and into our everyday lives. Internists now offer genetic testing for cancers and early coronary disease. Obstetricians make genetic predictions during pregnancy about a baby's future health. Even dentists are getting into the act, offering testing for a genetic propensity to peridontal disease. In this pathbreaking book, Lori Andrews provides the first detailed glimpse into how genetic testing can change your self-image, your relationships with loved ones, and your expectations about your children. She documents how ill prepared doctors are to deal with complex genetic issues. Andrews also uncovers the ways in which employers, insurers, schools, and courts have discriminated against people on the basis of their genetic make up. She traces the legal case history of genetics litigation and legislation and describes the ethical and social protections that need to be in place so that the Human Genome Project does not lead us directly toward Brave New World.In Future Perfect, Lori Andrews offers a new plan for making decisions as individuals and as a society based on emerging issues of ethics and science. Who should have access to your personal genetic information? Should genetic treatments be used to enhance characteristics such as intelligence in "normal" individuals? Should gene therapy be undertaken on embryos, changing their genetic inheritance, as well as that of future generations? If a woman learns she has a genetic mutation predisposing her to breast cancer, does she have a moral or even a legal duty to share that information with an estranged relative? Andrews considers the answer to these and many other questions that have profound implications for health care providers, medical organizations, social institutions, legislatures, courts, and ordinary people.

Keywords

Genetic screening --- Social aspects. --- #GBIB:CBMER --- Health Services --- Persons --- Social Control Policies --- Privacy --- Diagnostic Services --- Reproductive Physiological Processes --- Psychology, Social --- Social Sciences --- Confidentiality --- Genetic Techniques --- Investigative Techniques --- Genetics --- Medicine --- Diagnostic Techniques and Procedures --- Health Care Facilities, Manpower, and Services --- Policy --- Health Occupations --- Behavioral Sciences --- Behavior and Behavior Mechanisms --- Patient Rights --- Anthropology, Education, Sociology and Social Phenomena --- Jurisprudence --- Civil Rights --- Named Groups --- Social Control, Formal --- Diagnosis --- Reproductive Physiological Phenomena --- Preventive Health Services --- Biology --- Analytical, Diagnostic and Therapeutic Techniques and Equipment --- Health Care Economics and Organizations --- Psychiatry and Psychology --- Disciplines and Occupations --- Health Care --- Human Rights --- Behavioral Disciplines and Activities --- Community Health Services --- Reproductive and Urinary Physiological Phenomena --- Biological Science Disciplines --- Phenomena and Processes --- Natural Science Disciplines --- Genetic Testing --- Models, Theoretical --- Prejudice --- Public Policy --- Genetic Privacy --- Sociology --- Genetics, Medical --- Social Values --- Women --- Genetic Counseling --- Genetic Services --- Disabled Persons --- Reproduction --- Minority Groups --- Health & Biological Sciences --- Pathology --- social aspects. --- Social aspects --- Value Orientation --- Values, Social --- Value Orientations --- Human Genetics --- Medical Genetics --- Genetics, Human --- General Social Development and Population --- Genetic Information, Personal --- Personal Genetic Information --- Information, Personal Genetic --- Privacy, Genetic --- Migration Policy --- Population Policy --- Social Protection --- Social Policy --- Migration Policies --- Policies, Migration --- Policies, Population --- Policies, Public --- Policies, Social --- Policy, Migration --- Policy, Population --- Policy, Public --- Policy, Social --- Population Policies --- Protection, Social --- Public Policies --- Social Policies --- Prejudices --- Experimental Model --- Experimental Models --- Mathematical Model --- Model, Experimental --- Models (Theoretical) --- Models, Experimental --- Models, Theoretic --- Theoretical Study --- Mathematical Models --- Model (Theoretical) --- Model, Mathematical --- Model, Theoretical --- Models, Mathematical --- Studies, Theoretical --- Study, Theoretical --- Theoretical Model --- Theoretical Models --- Theoretical Studies --- Genetic Screening --- Predictive Genetic Testing --- Predictive Testing, Genetic --- Testing, Genetic Predisposition --- Genetic Predisposition Testing --- Genetic Predictive Testing --- Genetic Screenings --- Genetic Testing, Predictive --- Predisposition Testing, Genetic --- Screening, Genetic --- Screenings, Genetic --- Testing, Genetic --- Testing, Genetic Predictive --- Testing, Predictive Genetic --- Genetic Predisposition to Disease --- Natural Sciences --- Physical Sciences --- Discipline, Natural Science --- Disciplines, Natural Science --- Natural Science --- Natural Science Discipline --- Physical Science --- Science, Natural --- Science, Physical --- Sciences, Natural --- Sciences, Physical --- Biologic Sciences --- Biological Science --- Science, Biological --- Sciences, Biological --- Biological Sciences --- Life Sciences --- Biologic Science --- Biological Science Discipline --- Discipline, Biological Science --- Disciplines, Biological Science --- Life Science --- Science Discipline, Biological --- Science Disciplines, Biological --- Science, Biologic --- Science, Life --- Sciences, Biologic --- Sciences, Life --- Physiology, Reproductive and Urinary --- Reproductive and Urinary Physiological Phenomenon --- Reproductive and Urinary Physiology Concepts --- Reproductive and Urinary Physiology Phenomenon --- Reproductive and Urinary Tract Physiological Concepts --- Reproductive and Urinary Tract Physiological Phenomena --- Reproductive and Urinary Tract Physiological Phenomenon --- Reproductive and Urinary Tract Physiology --- Reproductive and Urinary Physiology --- Reproductive and Urinary Physiology Phenomena --- Community Healthcare --- Health Services, Community --- Services, Community Health --- Community Health Care --- Care, Community Health --- Community Health Service --- Community Healthcares --- Health Care, Community --- Health Service, Community --- Healthcare, Community --- Healthcares, Community --- Service, Community Health --- Group, Minority --- Groups, Minority --- Minority Group --- Human Reproductive Index --- Human Reproductive Indexes --- Reproductive Period --- Human Reproductive Indices --- Index, Human Reproductive --- Indexes, Human Reproductive --- Indices, Human Reproductive --- Period, Reproductive --- Periods, Reproductive --- Reproductive Index, Human --- Reproductive Indices, Human --- Reproductive Periods --- Physically Disabled --- Handicapped --- People with Disabilities --- Persons with Disabilities --- Physically Challenged --- Physically Handicapped --- Disabilities, People with --- Disabilities, Persons with --- Disability, Persons with --- Disabled Person --- Disabled, Physically --- Handicapped, Physically --- People with Disability --- Person, Disabled --- Persons with Disability --- Persons, Disabled --- Services, Genetic --- Genetic Service --- Service, Genetic --- Counseling, Genetic --- Genetic Counseling, Prenatal --- Prenatal Genetic Counseling --- Girls --- Woman --- Women's Groups --- Girl --- Women Groups --- Women's Group --- Equal Rights --- Equal Right --- Human Right --- Right, Equal --- Right, Human --- Rights, Equal --- Rights, Human --- Community-Based Distribution --- Contraceptive Distribution --- Delivery of Healthcare --- Dental Care Delivery --- Distribution, Non-Clinical --- Distribution, Nonclinical --- Distributional Activities --- Healthcare --- Healthcare Delivery --- Healthcare Systems --- Non-Clinical Distribution --- Nonclinical Distribution --- Delivery of Dental Care --- Health Care Delivery --- Health Care Systems --- Activities, Distributional --- Activity, Distributional --- Care, Health --- Community Based Distribution --- Community-Based Distributions --- Contraceptive Distributions --- Deliveries, Healthcare --- Delivery, Dental Care --- Delivery, Health Care --- Delivery, Healthcare --- Distribution, Community-Based --- Distribution, Contraceptive --- Distribution, Non Clinical --- Distributional Activity --- Distributions, Community-Based --- Distributions, Contraceptive --- Distributions, Non-Clinical --- Distributions, Nonclinical --- Health Care System --- Healthcare Deliveries --- Healthcare System --- Non Clinical Distribution --- Non-Clinical Distributions --- Nonclinical Distributions --- System, Health Care --- System, Healthcare --- Systems, Health Care --- Systems, Healthcare --- Healthcare Economics and Organizations --- Health Services, Preventive --- Preventive Health --- Preventive Health Care --- Preventive Health Programs --- Preventive Programs --- Services, Preventive Health --- Care, Preventive Health --- Health Care, Preventive --- Health Program, Preventive --- Health Programs, Preventive --- Health Service, Preventive --- Health, Preventive --- Preventive Health Program --- Preventive Health Service --- Preventive Program --- Program, Preventive --- Program, Preventive Health --- Programs, Preventive --- Programs, Preventive Health --- Service, Preventive Health --- Reproductive Physiologic Concepts --- Reproductive Physiological Phenomenon --- Reproductive Physiological Process --- Reproductive Physiological Concepts --- Concept, Reproductive Physiologic --- Concept, Reproductive Physiological --- Concepts, Reproductive Physiologic --- Concepts, Reproductive Physiological --- Phenomena, Reproductive Physiological --- Phenomenon, Reproductive Physiological --- Physiologic Concept, Reproductive --- Physiologic Concepts, Reproductive --- Physiological Concept, Reproductive --- Physiological Process, Reproductive --- Physiological Processes, Reproductive --- Process, Reproductive Physiological --- Processes, Reproductive Physiological --- Reproductive Physiologic Concept --- Reproductive Physiological Concept --- Antemortem Diagnosis --- Diagnoses and Examinations --- Examinations and Diagnoses --- Postmortem Diagnosis --- Antemortem Diagnoses --- Diagnoses --- Diagnoses, Antemortem --- Diagnoses, Postmortem --- Diagnosis, Antemortem --- Diagnosis, Postmortem --- Postmortem Diagnoses --- Disease --- Regulation --- Social Control --- Control, Social --- Controls, Social --- Formal Social Control --- Formal Social Controls --- Regulations --- Social Controls --- Patient's Rights --- Patients' Rights --- Right to Treatment --- Patient Right --- Patient's Right --- Patients Rights --- Patients' Right --- Right to Treatments --- Right, Patient --- Right, Patient's --- Right, Patients' --- Rights, Patient --- Rights, Patient's --- Rights, Patients' --- Treatment, Right to --- Treatments, Right to --- Equal Protection --- Legal Rights --- Voting Rights --- Due Process --- Civil Right --- Legal Right --- Protection, Equal --- Right, Civil --- Right, Legal --- Right, Voting --- Rights, Civil --- Rights, Legal --- Rights, Voting --- Voting Right --- Constitutional Law --- Court Decision --- Law --- Legal Aspects --- Legal Obligations --- Legal Status --- State Interest --- Litigation --- Medical Jurisprudence --- Aspect, Legal --- Aspects, Legal --- Constitutional Laws --- Court Decisions --- Decision, Court --- Decisions, Court --- Interest, State --- Interests, State --- Jurisprudence, Medical --- Law, Constitutional --- Laws --- Laws, Constitutional --- Legal Aspect --- Legal Obligation --- Litigations --- Obligation, Legal --- Obligations, Legal --- State Interests --- Status, Legal --- Proxemics --- Behavioral Science --- Proxemic --- Science, Behavioral --- Sciences, Behavioral --- Services, Health --- Health Service --- Service, Health --- Health Professions --- Health Occupation --- Health Profession --- Occupation, Health --- Occupations, Health --- Profession, Health --- Professions, Health --- Policies --- Healthcare Facilities, Manpower, and Services --- Diagnostic Technics and Procedures --- Technics and Procedures, Diagnostic --- Techniques and Procedures, Diagnostic --- Medical Specialities --- Medical Specialties --- Medical Specialty --- Specialities, Medical --- Specialties, Medical --- Specialty, Medical --- Medical Speciality --- Speciality, Medical --- Investigative Technics --- Investigative Technic --- Investigative Technique --- Technic, Investigative --- Technics, Investigative --- Technique, Investigative --- Techniques, Investigative --- Genetic Technic --- Genetic Technics --- Genetic Technique --- Technic, Genetic --- Technics, Genetic --- Technique, Genetic --- Techniques, Genetic --- Confidential Information --- Secrecy --- Patient Data Privacy --- Privacy of Patient Data --- Privileged Communication --- Communication, Privileged --- Communications, Privileged --- Data Privacy, Patient --- Information, Confidential --- Privacy, Patient Data --- Privileged Communications --- Science, Social --- Sciences, Social --- Social Science --- Social Psychology --- Psychologies, Social --- Social Psychologies --- Services, Diagnostic --- Diagnostic Service --- Service, Diagnostic --- PL 93-579 --- PL93-579 --- Privacy Act --- Public Law 93-579 --- Act, Privacy --- Law 93-579, Public --- PL 93 579 --- PL93 579 --- Public Law 93 579 --- Control Policies, Social --- Control Policy, Social --- Policies, Social Control --- Policy, Social Control --- Social Control Policy --- Person --- diagnosis --- methods --- Value of Life --- Virtues --- Social Norms --- Anthropology, Physical --- Chromosome Disorders --- Sex Chromosome Disorders --- Genetic Diseases, Inborn --- Molecular Medicine --- Pedigree --- DNA Fingerprinting --- Policy Making --- Computer Simulation --- Systems Theory --- Prenatal Diagnosis --- Preimplantation Diagnosis --- Cytogenetic Analysis --- Molecular Diagnostic Techniques --- Databases, Genetic --- Databases, Nucleic Acid --- Public Health Administration --- Social Work --- Community Health Planning --- Minority Health --- Rehabilitation Research --- Bedridden Persons --- Immobilization --- Sports for Persons with Disabilities --- Health Services for Persons with Disabilities --- Genetic Therapy --- Eugenics --- Directive Counseling --- Social Justice --- Human Rights Abuses --- Preventive Medicine --- Preventive Psychiatry --- Primary Prevention --- Patient Advocacy --- Truth Disclosure --- Bioethical Issues --- Race Relations --- Defamation --- Lawyers --- Occupations --- Human chromosome abnormalities --- Medical screening --- Sensitivity and Specificity --- Genetic Structures --- Genetic Phenomena --- Duty to Warn --- Disclosure --- Anonymous Testing --- Parental Notification --- Health Workforce --- Psychology, Perceptual --- Perceptual Psychology --- Affirmative Action --- Action, Affirmative --- Anti-Semitism --- Islamophobia --- Anti Semitism --- Anti-Semitisms --- Islamophobias --- Collective Human Rights --- Linguistic Rights --- Right to Housing and Shelter --- Rights of Indigenous Peoples --- Human Rights, Collective --- Indigenous Peoples Rights --- Rights, Collective Human --- Rights, Linguistic --- Minority Rights --- Minority Right --- Right, Minority --- Rights, Minority --- Implicit Bias --- Bia, Implicit --- Bias, Implicit --- Health Care Economics --- Health Economics --- Healthcare Economics --- Care Economic, Health --- Economic, Health --- Economic, Health Care --- Economic, Healthcare --- Economics, Health Care --- Health Care Economic --- Health Economic --- Healthcare Economic --- Diagnose --- Behavior And Behavior Mechanism --- Diagnostic Testing --- Testing, Diagnostic --- Paramedicine

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